Back on meds. I think it's the most depressing news I've had this month. After valiantly battling back to health, I saw the Super Fancy Disease Doctor today and even though my tests are looking okay, my symptoms are of concern. He doesn't know if the disease is flaring yet but to be careful, he's put me back on the dreaded prednisone. I hate prednisone.
I go back to see him in a month and then he'll decide if I need to go back on the methotrexate again. I really don't want to do any of it. I really don't want to cry either but that doesn't seem to matter either.
Girl with titanium hip will rock. Girl with titanium hip will write. Girl with titanium hip will read. Girl with titanium hip will battle crazy-ass disease called Wegener's Granulomatosis. Now stuff that in your spelling bee!
Wednesday, December 10, 2008
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10 comments:
A step back doesn't negate all the steps forward you seem to have taken(from what I've read). Whether we like it or not, it's a part of things. We all experience setbacks. The test is whether or not you let it stop you. You're doing great.
I can sympathize - it's so hard to have to revisit places you thought you'd left for good.
You're tough - you'll get through.
I'm sorry.
Sometimes you have to do what you have to do... You will be fine and will battle back with flair and ease. Don't mind me..being at my son's achool the last few days with 259 other kids for the xmas giftshop I'm a tad shell shocked and have to give props to the teachers they do it day after day.
Wear the slippers and let all of your worries slip away ;)
Hang in there! I'm sure that there are good days and bad days, and hopefully this bad day will precede many good ones to come!
i can relate. sometimes you just want to look up at the sky and say what more? when does it stop? trust me, i have had those days. scary as hell. hopefully it will resolve, as crazy and hard as it is try to stay in the light frame of mind. the darkness can only hurt, if not your body then your spirit. hang in there.
Thanks everyone, for your kind words and good thoughts and comfort. Today is already a better day.
Hang in there! Hopefully everything will work out for the best. :)
I'm sorry to hear this. Hope things look up for you soon.
I say SABOTAGE DUDE! You will kick this into submission just like you have before. And I think if you want to cry, then cry. Honour your feelings as much as your strength.
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