I might need to think up a new title...
Annnywaaay. The anemia has cleared up, which means they've sort of found my blood (yay!). I'm also cleared to go back to work on Monday (which is good because I'm getting a bit bored of being by myself so much). However, the disease situation remains the same. The fatigue, the achy joints, the kidney involvement, the sinus infection, it's all unchanged. In fact, it's pretty much the same as I was feeling six, eight months ago. The only difference being they're still not sure how to treat me. So, we go around the bend again, more tests, and I see him in a month. That's when I guess they'll decide which super-fancy drug to put me on to battle the Wegener's.
Until then, I've got to go for a bone density test and an MRI because my other hip, not the tragic one, has been hurting and they're worried about avascular necrosis. Now wouldn't that be a fun complication? My body just seems to be rejecting the drugs at every single turn.
Oh, and he's given me three weeks worth of antibiotics to take, which should be fun...but maybe, at least maybe, it'll clear up my stupid sinus headaches. It's a never-ending cycle it seems. The more confused they are about me, the more confused I am about knowing what's going on...
Girl with titanium hip will rock. Girl with titanium hip will write. Girl with titanium hip will read. Girl with titanium hip will battle crazy-ass disease called Wegener's Granulomatosis. Now stuff that in your spelling bee!
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1 comment:
GOOD LORD. Brutal dude.
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